Coutistic / Poupou Transpositeur (@poupou24_)

laen 🍃 @moonrabbit@sunny.garden

3w

we are expecting Weather, so i've had my shower early in case of thunder/lightning. and remembered why i don't normally have it before late.

somehow i can function better after 11pm, no idea why. i get a short window where i can tidy a little, vacuum, get through a shower. with help on that last one, but it's all relatively straightforward (ish).

but it got to the point today where husband was having to "threaten" me with ridiculous stuff to make me laugh/stop crying so he could help me wash and get out of the bathroom. i'm now sitting here completely exhausted and with chest pain.

i like it not.

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Coutistic / Poupou Transpositeur @poupou24_@peculiar.florist

3w

@moonrabbit the same about me : I am tired all the day, and when comes the time to sleep I am "able" to do all the stuff I wanted during the day
My theory is because we are sleepy/tired/whatever, we rest
And we rest enough to do some stuff later
And the night doesn't help because of many struggle ?
(Pain, trauma if there is, apnee du sommeil, ND brain, etc.)
Even if we sleep all the night, it doesn't mean it a good sleep, so...
(And yes fatigue chronique comes with all of this, and that doesn't help)

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laen 🍃 @moonrabbit@sunny.garden

3w

@poupou24_
:Blobhaj_Heart: i'm sorry you have similar struggles.

for me it's ... i don't know. not just tired (although it is tired), but all of my nervous system and POTS stuff is a bit better at around midnight. so i can breathe more easily, and there's less tachycardia, and my brain functions better. also my nervous system is less on the verge of collapse? i definitely have less shaking. i don't know. sigh.

but yes sleep is rarely a good sleep :blobweary:

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Coutistic / Poupou Transpositeur @poupou24_@peculiar.florist

3w

@moonrabbit oh right, you have POTS, that means it is complicated to move
Like sit and up, and stuff like that
Have you try oxygene ? Since there is less heat, you can use the machine ?

Plein de courage et de fluff frais !

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laen 🍃 @moonrabbit@sunny.garden

3w

@poupou24_
no to the oxygen, sadly. i don't have the machine any more. the first one was so much perfume, and then the second one they sent was perfume, cigarette smoke, and mould :blobcatscared:
so i sent it back, and that was the end of it.

but yes i have much difficulty standing up. somehow though it's a little better late at night! (although i think not tonight)

have you had storms? we had one a little while ago ... maybe there will be another?

fluff frais :blobcataww:
courage et fluff à toi aussi. et de sommeil :bunhdcomfyhappy:

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